{"id":20256,"date":"2024-10-25T14:26:18","date_gmt":"2024-10-25T12:26:18","guid":{"rendered":"https:\/\/slavej.mk\/arbnora-elezi-zenata-so-stakleno-telo-no-celicen-duh-2\/"},"modified":"2025-01-08T15:28:44","modified_gmt":"2025-01-08T14:28:44","slug":"arbnore-elezi-gruaja-me-trup-te-qelte-por-me-shpirt-te-celikte","status":"publish","type":"post","link":"https:\/\/b2b.slavej.mk\/sq\/arbnore-elezi-gruaja-me-trup-te-qelte-por-me-shpirt-te-celikte\/","title":{"rendered":"Arbnor\u00eb Elezi \u2013 gruaja me trup t\u00eb qelt\u00eb, por me shpirt t\u00eb \u00e7elikt\u00eb<\/strong>"},"content":{"rendered":"

Arbnor\u00eb Elezi \u00ebsht\u00eb lindur me duar dhe k\u00ebmb\u00eb t\u00eb thyera. Menj\u00ebher\u00eb pas lindjes, ajo u diagnostikua me Osteogenesis Imperfecta, tipi 3 q\u00eb do t\u00eb thot\u00eb “kocka qelqi”. P\u00ebr shkak t\u00eb diagnoz\u00ebs, Arbnora u mbijetoi mbi 200 frakturave n\u00eb f\u00ebmij\u00ebrin\u00eb e saj, p\u00ebrdor nj\u00eb karrige me rrota, ka skolioz\u00eb t\u00eb r\u00ebnd\u00eb, dhimbje dhe deformime t\u00eb kockave, por edhe nj\u00eb shpirt t\u00eb jasht\u00ebzakonsh\u00ebm dhe luftarak p\u00ebr t\u00eb arritur sukses.<\/strong><\/p>\n

N\u00ebp\u00ebrmjet rrjeteve sociale, n\u00eb m\u00ebnyr\u00ebn e saj unike, me shum\u00eb humor dhe pozitivitet, ajo lufton p\u00ebr t\u00eb thyer paragjykimet p\u00ebr personat me aft\u00ebsi ndryshe. Jeta e saj \u00ebsht\u00eb nj\u00eb frym\u00ebzim q\u00eb ne mund t\u00eb arrijm\u00eb gjith\u00e7ka \u2013 edhe kur duket e pamundur.<\/strong><\/p>\n

Shpjegoni m\u00eb shum\u00eb p\u00ebr diagnoz\u00ebn tuaj, se si erdhi deri aty?<\/strong><\/p>\n

Un\u00eb jam lindur n\u00eb Maqedoni, jam 29 vje\u00e7e, jam me aft\u00ebsi ndryshe q\u00eb nga lindja, vuaj nga nj\u00eb diagnoz\u00eb e r\u00ebnd\u00eb dhe e pash\u00ebrueshme e Osteogenesis Imperfecta, tip 3, q\u00eb do t\u00eb thot\u00eb kocka qelqi. Un\u00eb kisha mbi 200 thyerje krahu e k\u00ebmbe si f\u00ebmij\u00eb dhe p\u00ebrdora nj\u00eb karrige me rrota. Krah\u00ebt dhe k\u00ebmb\u00ebt e mia jan\u00eb t\u00eb deformuara, dh\u00ebmb\u00ebt e mi jan\u00eb t\u00eb thyesh\u00ebm, trupi im \u00ebsht\u00eb i vog\u00ebl dhe i pazhvilluar. \u00cbsht\u00eb nj\u00eb diagnoz\u00eb e trash\u00ebguar, gjenetike. Dikush n\u00eb familjen time e kishte tashm\u00eb at\u00eb. Kur u linda n\u00eb Maqedoni m\u00eb 1994, mjek\u00ebt m\u00eb b\u00ebn\u00eb diagnoz\u00ebn dhe e k\u00ebshilluan baban\u00eb q\u00eb t\u00eb largohej nga Maqedonia sepse nuk kishte kushte p\u00ebr mjekim. U shp\u00ebrngul\u00ebm n\u00eb Kroaci dhe n\u00eb Maqedoni vinim vet\u00ebm p\u00ebr pushime, p\u00ebr t\u00eb par\u00eb familjen. Jam rritur n\u00eb Kroaci dhe kam kaluar nj\u00eb pjes\u00eb t\u00eb jet\u00ebs sime k\u00ebtu deri n\u00eb mesin e t\u00eb 20-ave, kur u martova dhe me burrin u transferova n\u00eb Gjermani.<\/p>\n

Si \u00ebsht\u00eb nj\u00eb dit\u00eb e juaja?<\/strong><\/p>\n

Zgjohem n\u00eb or\u00ebn 5 t\u00eb m\u00ebngjesit p\u00ebr t\u00eb d\u00ebrguar bashk\u00ebshortin tim n\u00eb pun\u00eb sepse ai me siguri zgjon gjith\u00eb sht\u00ebpin\u00eb kur d\u00ebgjon alarmin dhe p\u00ebrfundon duke mos e d\u00ebgjuar, hehehe. Pastaj pushoj edhe pak dhe rreth or\u00ebs 7 e d\u00ebrgoj vajz\u00ebn n\u00eb kopsht. Pastaj b\u00ebj kafe, b\u00ebhem gati dhe punoj, xhiroj, u p\u00ebrgjigjem emailave, studioj gjermanisht. Derisa burri dhe vajza t\u00eb vijn\u00eb n\u00eb sht\u00ebpi, un\u00eb b\u00ebj drek\u00ebn. Kur vijn\u00eb, un\u00eb u p\u00ebrkushtohem plot\u00ebsisht atyre. Pasi shkojn n\u00eb shtrat, pushoj me nj\u00eb film apo di\u00e7ka q\u00eb m\u00eb p\u00eblqen t\u00eb b\u00ebj dhe \u00ebsht\u00eb koha p\u00ebr t\u00eb fjetur. Kjo \u00ebsht\u00eb nj\u00eb dit\u00eb e zakonshme, por sigurisht q\u00eb ka p\u00ebrjashtime, kur burri nuk \u00ebsht\u00eb n\u00eb pun\u00eb ose f\u00ebmija \u00ebsht\u00eb n\u00eb sht\u00ebpi.<\/p>\n

Sa \u00ebsht\u00eb e v\u00ebshtir\u00eb\/e leht\u00eb jeta p\u00ebr personat me aft\u00ebsi ndryshe?<\/strong><\/p>\n

Ndonj\u00ebher\u00eb \u00ebsht\u00eb shum\u00eb e v\u00ebshtir\u00eb. Aft\u00ebsia nderyshe ka sfidat dhe v\u00ebshtir\u00ebsit\u00eb e saj dhe ndonj\u00ebher\u00eb nuk \u00ebsht\u00eb aspak e leht\u00eb. Sidomos n\u00ebse keni dhimbje dhe luftoni me trupin tuaj \u00e7do dit\u00eb. Fryma pozitive dhe besimi n\u00eb Zotin e dashur jan\u00eb shum\u00eb t\u00eb r\u00ebnd\u00ebsishme q\u00eb nj\u00eb person t\u00eb mbetet i fort\u00eb dhe me nj\u00eb psikik\u00eb t\u00eb sh\u00ebndosh\u00eb. N\u00ebse nuk e ke k\u00ebt\u00eb, \u00ebsht\u00eb shum\u00eb e v\u00ebshtir\u00eb t\u00eb funksionosh dhe t\u00eb luftosh ndaj t\u00eb gjitha problemeve. N\u00eb rrjetet e mia sociale, duke filmuar p\u00ebr faqen Arbnora Elezi n\u00eb Facebook, me t\u00eb v\u00ebrtet\u00eb p\u00ebrpiqem t\u00eb kap k\u00ebshillat e mia p\u00ebr njer\u00ebzit dhe, p\u00ebrmes shembujve t\u00eb mi, t’u tregoj atyre se si luftoj.
\n<\/b><\/p>\n

Cila \u00ebsht\u00eb mb\u00ebshtetja m\u00eb e madhe e juaja?<\/strong><\/p>\n

Mb\u00ebshtetja ime m\u00eb e madhe jan\u00eb bashk\u00ebshorti, vajza ime dhe familja ime, n\u00ebna ime, babai im q\u00eb ka nd\u00ebrruar jet\u00eb dhe tri motrat e mia. Ata jan\u00eb mb\u00ebshtetja ime morale. Un\u00eb po luftoj p\u00ebr burrin dhe vajz\u00ebn time dhe nuk dor\u00ebzohem. Por edhe un\u00eb punoj shum\u00eb me veten, lexoj, i p\u00ebrkushtohem sh\u00ebndetit mendor sepse \u00ebsht\u00eb shum\u00eb i r\u00ebnd\u00ebsish\u00ebm. Gj\u00ebja m\u00eb e r\u00ebnd\u00ebsishme \u00ebsht\u00eb t\u00eb d\u00ebgjoni veten dhe nevojat tuaja. Gjith\u00e7ka fillon aty.<\/p>\n

Ju jeni n\u00ebn\u00eb. Si iu p\u00ebrshtate k\u00ebtij roli, duke pasur parasysh diagnoz\u00ebn tuaj?<\/strong><\/p>\n

Un\u00eb dhe burri im donim t\u00eb kishim nj\u00eb f\u00ebmij\u00eb nj\u00eb dit\u00eb, por nuk e kishim planifikuar sakt\u00ebsisht se kur. Ndodhi me urdh\u00ebr t\u00eb Zotit, babai im po vdiste nga kanceri q\u00eb u zbulua shum\u00eb von\u00eb, pastaj Zoti im i dashur m\u00eb d\u00ebrgoi f\u00ebmij\u00ebn tim. Naja \u00ebsht\u00eb lindur pas vdekjes s\u00eb babait tim… Emri i saj do t\u00eb thot\u00eb edhe rehati edhe paqe. Naja \u00ebsht\u00eb lindur si nj\u00eb f\u00ebmij\u00eb i sh\u00ebndetsh\u00ebm, me prerje cezariane, n\u00eb jav\u00ebn e 38-t\u00eb t\u00eb shtatz\u00ebnis\u00eb.<\/p>\n

\u00c7far\u00eb do t’u thoshit grave me aft\u00ebsi ndryshe q\u00eb duan t\u00eb b\u00ebhen n\u00ebna?<\/strong><\/p>\n

Me organizim t\u00eb mir\u00eb, dashuri p\u00ebr jet\u00ebn dhe besim n\u00eb Zotin e dashur – gjith\u00e7ka \u00ebsht\u00eb e mundur. E r\u00ebnd\u00ebsishme \u00ebsht\u00eb q\u00eb gjith\u00e7ka t\u00eb planifikohet mir\u00eb, t\u00eb ket\u00eb mb\u00ebshtetje nga shteti, shoq\u00ebria, familja, partneri… gjith\u00e7ka mund t\u00eb organizohet. F\u00ebmij\u00ebt jan\u00eb bekimi m\u00eb i madh dhe gjith\u00eb dhimbjen q\u00eb kalon nj\u00eb grua, f\u00ebmij\u00ebt ia kthejn\u00eb me buz\u00ebqeshje. Nuk ka rol m\u00eb t\u00eb madh dhe m\u00eb t\u00eb bukur n\u00eb jet\u00eb se sa m\u00ebm\u00ebsia. Sidomos n\u00ebse jeni person me aft\u00ebsi ndryshe. At\u00ebher\u00eb sakrifica \u00ebsht\u00eb m\u00eb e madhe, por edhe dashuria \u00ebsht\u00eb m\u00eb e madhe!<\/p>\n

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Cila \u00ebsht\u00eb motoja juaj q\u00eb ju jep forc\u00eb dhe frym\u00ebzim n\u00eb jet\u00eb<\/strong>?<\/p>\n

Babai im ishte dashuria ime e madhe dhe mb\u00ebshtetja m\u00eb e madhe. T\u00eb gjitha k\u00ebshillat e tij jan\u00eb gjithmon\u00eb n\u00eb kok\u00ebn time dhe nj\u00ebra prej tyre \u00ebsht\u00eb: \u201cTi Arbnor\u00eb vleni sa tre f\u00ebmij\u00eb t\u00eb sh\u00ebndosh\u00eb, se ke mendje t\u00eb sh\u00ebndosh\u00eb mbi supe.\u201d Dhe kjo \u00ebsht\u00eb v\u00ebrtet e sakt\u00eb. Nj\u00eb mendje e sh\u00ebndosh\u00eb mbi supe \u00ebsht\u00eb m\u00eb e vlefshme.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n

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Cili \u00ebsht\u00eb mesazhi juaj p\u00ebr t\u00eb gjith\u00eb ata q\u00eb po p\u00ebrballen me aft\u00ebsi ndryshe fizike?<\/strong><\/p>\n

Mesazhi im p\u00ebr t\u00eb gjith\u00eb njer\u00ebzit me aft\u00ebsi ndryshe thuhet n\u00eb nj\u00eb nga citimet e mia “Nuk ka paaft\u00ebsi m\u00eb t\u00eb keqe se krah\u00ebt e thyer”. Dhe kjo \u00ebsht\u00eb e v\u00ebrtet\u00eb. Punoni me veten tuaj, doni gjith\u00e7ka dhe pranoni gjith\u00e7ka dhe d\u00ebgjoni d\u00ebshirat tuaja. N\u00eb p\u00ebrputhje me mund\u00ebsit\u00eb, kap\u00ebrceni frik\u00ebn tuaj dhe luftoni. Zoti do t’ju shp\u00ebrblej\u00eb.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n<\/div>\n<\/div>\n<\/div>\n<\/article>\n","protected":false},"excerpt":{"rendered":"

Arbnor\u00eb Elezi \u00ebsht\u00eb lindur me duar dhe k\u00ebmb\u00eb t\u00eb thyera. Menj\u00ebher\u00eb pas lindjes, ajo u diagnostikua me Osteogenesis Imperfecta, tipi 3 q\u00eb do t\u00eb thot\u00eb “kocka qelqi”. P\u00ebr shkak t\u00eb diagnoz\u00ebs, Arbnora u mbijetoi mbi 200 frakturave n\u00eb f\u00ebmij\u00ebrin\u00eb e saj, p\u00ebrdor nj\u00eb karrige me rrota, ka skolioz\u00eb t\u00eb r\u00ebnd\u00eb, dhimbje dhe deformime t\u00eb kockave, […]<\/p>\n","protected":false},"author":188,"featured_media":19690,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[658],"tags":[],"class_list":["post-20256","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-pervoja"],"yoast_head":"\nArbnor\u00eb Elezi \u2013 gruaja me trup t\u00eb qelt\u00eb, por me shpirt t\u00eb \u00e7elikt\u00eb - Slavej<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/b2b.slavej.mk\/sq\/arbnore-elezi-gruaja-me-trup-te-qelte-por-me-shpirt-te-celikte\/\" \/>\n<meta property=\"og:locale\" content=\"sq_AL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Arbnor\u00eb Elezi \u2013 gruaja me trup t\u00eb qelt\u00eb, por me shpirt t\u00eb \u00e7elikt\u00eb - Slavej\" \/>\n<meta property=\"og:description\" content=\"Arbnor\u00eb Elezi \u00ebsht\u00eb lindur me duar dhe k\u00ebmb\u00eb t\u00eb thyera. 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